Quality of Life of Type 1 Neurofibromatosis Patients: A Scoping Review Protocol


Objective: To map concepts, findings, and limitations related to quality of life in children, adolescents, and young adults with neurofibromatosis type 1. Method: This is a scoping review protocol based on Joanna Briggs Institute guidelines. Data searches will be conducted on platforms including PubMed/MEDLINE, EMBASE, Web of Science, Lilacs, CINAHL, Open Grey, and Google Scholar. The retrieved manuscripts will be organized using the Rayyan tool for duplicate identification and removal. Subsequently, the articles and other materials will be processed in the same tool for screening and selection of eligible studies by two independent researchers, and this entire process will be described in a flowchart adapted from the PRISMA-ScR checklist. Data extracted from eligible manuscripts will be presented in tables, figures, and flowcharts as appropriate. The data will be discussed and correlated to identify potential strengths and limitations related to the research topic.

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